Carers

Caring about someone with an eating disorder can be difficult. Whether you are a relative, friend or a colleague, you may be feeling concerned, confused and unsure about how to help. Carers of people with eating disorders may feel anxious because of the highly visible symptoms of starvation, abnormal food behaviours and personality change.

Understandably, this can lead to a desire to have information about the treatment, progress and well-being of their relative.

There are laws protecting individuals’ rights to privacy and guaranteeing them confidentiality, which means we are unable to share any personal information with carers without the permission of the individual patient.

All patients are however, given the option of choosing the level of carer involvement they would like and we encourage an open dialogue and close involvement whenever possible.

We do however aim to provide carers with sufficient information to help them provide care effectively.

We are able to give information on:


  • Issues related to the illness in general
  • The danger signs that can alert you to medical risk
  • What to do in the event that you are concerned about health and safety
  • Leicestershire Adult Eating Disorder Service and treatment programme, as well as other services available to you and your relative
  • Further information about your rights as a carer

Support for Carers


This service recognises that carers have needs in their own right and that supporting a loved one with an eating disorder can be stressful. The service has put together a resource for the families and friends of people who have an eating disorder. A PDF version of this can be downloaded here.Friends, families & carers Pack

All carers are entitled to a Carers Assessment. This is carried out by Local Authorities but more information about accessing an assessment can be found on the NHS choices website.

There is a local carers group which has the support of a carers advocate from the voluntary sector. The group meets monthly and provides space for mutual support from other carers. Leicestershire Adult Eating Disorder Service provides input into this group when requested. This involves topic based discussions, presentations, information sharing etc. Senior staff in the service maintain regular contact with the group. If you are interested in finding out more about this group they can be contacted through their website www.leics-edcg.btck.co.uk.

Directory of useful contacts:


Organisations for Carers
  • Carers UK campaign for carers, and provide information and advice
  • Carers Trust provide information, advice and support services for carers
  • Young Carers Net provide information, advice and an online community for young carers
  • NHS Live Well have in their eating disorder section advice for parents and supporting someone with an eating disorder pages
  • Carers Direct is an NHS service for carers including a website and phone line (0808 802 02 02)
  • Carers Information provide up to date information and resources relative to people in a caring role
  • Parentline Plus provide information and advice to parents, and have a website or can be called on 0808 800 2222 (24 hours a day, 7 days a week)
  • The Institute of Psychiatry have some downloadable resources for carers on their website
  • The New Maudsley Approach website offer a resource for carers of people with eating disorders
  • F.E.A.S.Toffer support and advice for carers of people with eating disorders
  • CLASP Leicester are a Leicestershire based charity helping families and carers
Legal Information
  • Citizens Advice Bureau provide advice about your rights, responsibilities and entitlements
  • Community Legal Advice offer free, confidential and independent legal advice to residents of England & Wales
  • Mind run a Legal Advice Service
  • Rethink have a Rights & Law section on their website
  • Carers Information has a Legal Issues that Affect Carers section and a Carers Legislation section on their website
  • Carers Direct website has a Money & Legal section
Finances and Benefits
  • Carers UK provide a downloadable Guide to Carers' Rights and Benefits on their website
  • Rethink have a money, debt &benefits section on their website
  • Citizens Advice Bureau provide information about benefits for carers and financial advice
  • Carers Direct website has a Money & Legal section
  • Carers Information have a Benefits & Finance section on their website
  • Direct Gov have a Money, Tax and Benefits section on their website
Personal Websites
  • AnorexiaCarers shares Rob and Helen's experience of an eating disorder and their journey to recovery, with helpful tips and ideas of how carers can help
  • Men Get Eating Disorders Too provides information, advice, and links to support relevant to male sufferers of eating disorders
  • Working Together Care is a web magazine aiming to help carers (professional, family and home) to work together

This list of resources is derived from the B-eat website